WHO 회원국에 보내는 공개서한

2019년 2월 1일, 이탈리아는 세계보건기구(WHO)에 투명성에 관한 결의안 초안을 제출했다. 이 결의안은 2019년 5월 제72차 세계보건총회(WHA)에서 논의될 예정이다.

제안된 결의안의 제목은 “의약품, 백신, 그리고 다른 보건 기술 시장의 투명성 제고”이며, 결의안은 이 목적을 달성하기 위해 고안된 여러 조치들을 제시한다.

의약품, 백신 및 기타 보건 기술의 혁신 및 공급망에 관한 정보에 접근함에 있어 안타까운 비대칭이 존재한다. 정보의 부족은 의약품, 백신, 보건 기술의 가격, 연구개발 비용과 관련된 기본적인 사실들에 대한 혼란을 야기한다.

이 결의안은 세계보건기구(WHO)를 위한 작업 프로그램과 함께, 정부들이 이러한 기술의 다양한 측면의 투명성 향상에 협력하기 위한 규범을 만들어 낼 것이다.

정부들이 보건 기술 혁신을 위한 가격결정 및 인센티브 제도의 개혁을 고려해야 할 중대한 시기이다. 이 결의안에서 제안된 투명성 수단들은 그러한 개혁을 위한 검토가 가능한 최선의 증거에 기초하도록 보장할 것이다.

우리는 당신의 정부가 이 결의안을 지지할 것을 촉구한다.

단체 (알파벳 순서)

1.     Access to Medicines Ireland (Ireland)

2.     Accion Internacional para la Salud – Perú

3.     Action against AIDS (Germany)

4.     ACTION Global Health Advocacy Partnership (Global)

5.     AIDES (France)

6.     AIDS and Rights Alliance for Southern Africa (ARASA)

7.     AIDS Healthcare Foundation (AHF) (US)

8.     Alliance for Reproductive Health Rights (ARHR) (Ghana)

9.     Associação Brasileira Interdisciplinar de AIDS (ABIA) (Brazil)

10.  Ben Newman Hope Care Foundation (Ghana)

11.  Botswana Network on Ethics, Law and HIV/AIDS (BONELA) (Botswana)

12.  BUKO Pharma-Kampagne (Germany)

13.  Cancer Alliance (South Africa)

14.  Center for Health, Human Rights and Development (CEHURD) (Kampala, Uganda)

15.  Centre for Community Studies, Action and Development (CENCOSAD) (Ghana)

16.  Chasing Zero (UK)

17.  Coalition Plus

18.  Commons Network (EU)

19.  Consumer Association the Quality of LIfe – EKPIZO (Greece)

20.  Drug for Neglected Diseases Initiative (DNDi)

21.  Empower India (India)

22.  European Alliance for Responsible R&D and Affordable Medicines

23.  European Public Health Alliance (EPHA)

24.  France Assos Santé (France)

25.  Global Health Advocates (France)

26.  Global Justice Now (UK)

27.  Groupe sida Genève – (Switzerland)

28.  Grupo de Trabalho sobre Propriedade Intelectual (GTPI) (Brazil)

29.  Health Action International (HAI)

30.  Health Gap

31.  Health Innovation in Practice (HIP)

32.  Heart to Heart Foundation (Thailand)

33.  Hepatitis Scotland (UK)

34.  IFARMA Foundation (Colombia)

35.  Interfaith Center for Corporate Responsibility (ICCR)(US)

36.  International Treatment Preparedness Coalition (ITPC)

37.  Just Treatment (UK)

38.  KEI Europe (Switzerland)

39.  Kenya Legal & Ethical Issues Network (KELIN) (Kenya)

40.  Kenyan Network of Cancer Organizations (KENCO) (Kenya)

41.  Knowledge Ecology International (KEI)

42.  Korean Pharmacists for Democratic Society (KPDS) (South Korea)

43.  Malawi Network of Religious Leaders Living with or Personally Affected by HIV and AIDS (MANERELA+) (Malawi)

44.  Médecins du Monde International

45.  Médecins Sans Frontières Access Campaign

46.  Misión Salud (Colombia)

47.  NCD Alliance East Africa (EANCDA)

48.  Non Communicable Disease Alliance of Kenya ( NCD-AK) (Kenya)

49.  Oxfam

50.  Pan African Positive Women’s Coalition-Zimbabwe

51.  Pan-African Treatment Access Movement (PATAM)

52.  People’s Health Institute (PHI) (South Korea)

53.  People’s Health Movement (PHM)

54.  PHM East Africa

55.  PHM Kenya

56.  Positive Malaysian Treatment Access & Advocacy Group (MTAAG+) (Malaysia)

57.  Prescrire (France)

58.  Public Citizen (US)

59.  Public Eye (Switzerland)

60.  Réseau Accès aux Médicaments Essentiels (RAME) (Burkina Faso)

61.  Salud por Derecho (Spain)

62.  Salud y Farmacos (USA)

63.  Save the Children

64.  SECTION27 (South Africa)

65.  Solthis (France)

66.  Southern African Programme on Access to Medicines and Diagnostics

67.  STOPAIDS (UK)

68.  T1International

69.  Tanzania Breast Cancer Foundation (Tanzania)

70.  Third World Network (TWN)

71.  Test Aankoop/Test Achats (Belgium)

72.  Trans Atlantic Consumer Dialogue (TACD)

73.  TranspariMED (UK)

74.  Treatment Action Group (TAG) (United States)

75.  Treatment Advocacy and Literacy Campaign (TALC) – Zambia

76.  Uganda NCD Alliance (Uganda)

77.  Union for Affordable Cancer Treatment (UACT)

78.  Universal Access to Health Care Campaign (UAHCC) (Ghana)

79.  Universities Allied for Essential Medicines (UAEM)

80.  Wemos (Netherlands)

81.  Women’s Coalition Against Cancer ( WOCACA) (Malawi)

82.  Yolse (Switzerland)

83.  Young Professionals Chronic Disease Network (YP-CDN)

개인 (알파벳 순서)

1.     Aidan Hollis, Professor of Economics, University of Calgary.

2.     Amy Kapczynski, Professor of Law, Yale Law School, Faculty Co-Director of the Global Health Justice Partnership, and Faculty Co-Director of the Collaboration for Research Integrity and Transparency.

3.     Brook Baker, Professor of Law, Northeastern University, School of Law, Research Fellow, University of KwaZulu Natal in Durban, South Africa.

4.     Diane Singhroy, PhD, Research Associate, McGill University.

5.     Ellen ‘t Hoen, LLM, PhD. Director, Medicines Law & Policy.

6.     Fifa Rahman, Board Member Unitaid NGO Delegation and PhD Candidate (International Trade and Intellectual Property), University of Leeds.

7.     Gilberto de Lima Lopes Junior, MD, MBA, FAMS, Associate Professor of Clinical Medicine Medical Director for International Programs Associate Director for Global Oncology Co-Leader, Lung Cancer Site Disease Group Sylvester Comprehensive Cancer Center at the University of Miami and the Miller School of Medicine.

8.     Hani Serag, Egyptian Foundation for Health for All.

9.     Hannes Braberg, Staff Scientist at University of California, San Francisco.

10.  Jorge Bermudez, MD, DSc, Head of the Department of Medicines and Pharmaceutical Policies, National School of Public Health/ Oswaldo Cruz Foundation, Member of the UN Secretary-General High-Level Panel on Access to Medicines.

11.  Lawrence Gostin, University Professor, Georgetown University, Washington, DC.

12.  Leeza Osipenko, PhD. Senior Lecturer in Practice, LSE.

13.  Margo A. Bagley, Asa Griggs Candler Professor of Law, Emory University School of Law, Faculty Fellow, Emory Global Health Initiative (EGHI), Senior Fellow, Centre for International Governance Innovation (CIGI), Collaborator, Harvard University Global Access in Action (GAiA) Program.

14.  Mariana Mazzucato, Professor in the Economics of Innovation and Public Value, University College London; Founder and Director, the UCL Institute for Innovation and Public Purpose.

15.  Marie-Paule Kieny, PhD. Director of Research, Institut national de la santé et de la recherche médicale (INSERM), Chair, Drugs for Neglected Diseases Initiative Board of Directors, and Chair, Medicines Patent Pool Foundation Governance Board.

16.  Melissa Barber, PhD student, Harvard University.

17.  Ophira Ginsburg, Associate Professor, Department of Population Health, New York University School of Medicine.

18.  Ravi Ram, Director, RMH Systems, and Independent Health Systems Evaluator, Kenya.

19.  Suerie Moon, MPA, PhD. Director of Research at the Global Health Centre, Graduate Institute of International and Development Studies, Geneva and Adjunct Lecturer on Global Health at the Harvard T.H. Chan School of Public Health.

20.  William “Terry” W. Fisher III. WilmerHale Professor of Intellectual Property Law at Harvard Law School and Faculty Director of the Berkman Center for Internet and Society.